National FH Registry resources:
The National Familial Hypercholesterolaemia Registry – an introduction (5:51 min video) N.B. The user interface has been updated since this video was created, but it is still useful to demonstrate general concepts.
National FH Registry – Charter, Protocol and Guidelines
National FH Registry – User Manual
FH Registry – Data Entry Form (Core Data)
Other resources:
HEART UK Junior HEART UK Primary HEART UK Secondary
FH information sheet – patient – Preventive Cardiovascular Nurses Association information sheet for a patient with FH
FH information sheet – relative – Preventive Cardiovascular Nurses Association information sheet for a relative of a patient with FH
FH Registry News:
FH Registry News – September 2019
FH Registry News – November 2018
FH Registry News – February 2018
FH Registry News – August 2017
FH Registry News – February 2017