A global partnership to escalate awareness of FH in the public domain, medical community and government. The International FH Foundation orchestrates collaboration and resolve between these sectors to reduce the tragic costs of premature cardiac events and death in FH patients.
Leading Australian charity that provides a wealth of resources for health professionals and the community on all aspects of cardiovascular disease.
New Zealand group of experts that specialises in developing and implementing guidelines for best clinical practice; excellent resources on the assessment and management of all cardiovascular risk factors.
Rational Assessment of Drugs and Research (RADAR), National Prescribing Service (NPS)
Evidence based assessment of all new drugs, PBS listings and latest research for health professionals provided by the NPS, an independent organisation funded by the Australian Government Department of Health and Ageing.
Office of Population Genomics, FH Pilot Cascade Screening Program, Western Australia
State funded office that aims to translate genomic knowledge into health benefits for WA health; resources provided relevant to the detection and management of FH
Centre for Genetics Education, New South Wales Health
Educational arm of NSW Genetic Service that provides genetic information for individuals and their families affected by genetic conditions and health professionals who work with them.
Human Genetics Society of Australasia
Premier Australasian society that provides educational materials, training, polices, guidelines and position statements on all aspects of human genetics.
Helping Australians Maintain Strong Hearts. Through peer support, information and encouragement, Heart Support-Australia help people affected by heart conditions achieve excellent health outcomes.
FH Family Support Group of Western Australia
Website of the first support group in Australia for families with FH; provides relevant information, communication and support services.
Leading UK cholesterol charity that provides extensive resources for health professionals, patients and families on all aspects of the detection and management of FH.
Heart UK – FH Guideline Implementation Team Toolkit
Invaluable resource for implementing the seminal NICE guideline 71 on identification and management of FH.
Leading British foundation provides excellent resources for health professionals and patients, including informative videos on a wide spectrum of conditions and risk factors.
Wales FH Testing Service, Cardiff University
Leading FH service in the UK that provides useful information and resources for clinical practice, including activities of FH Family Forum.
Public Health Genomics Foundation, UK
International foundation that publishes authoritative reports on the role of advances in genomics in health care, and has a particularly excellent document on services for inherited cardiovascular conditions.
UNITED STATES OF AMERICA
National Lipid Association (NLA) USA
US based multidisciplinary specialty society providing education on detection and management of dyslipidaemia and related disorders.
Make Early Diagnosis Prevent Early Death (MEDPED) FH
US based website of the original MEDPED Project coordinated by the University of Utah School of Medicine (Salt Lake City, Utah, US) focusing on all aspects of the management of FH, including education of patients and families and the first attempt at establishing a US registry.
Information for patients with dyslipidaemia including FH.
Lipids Online, Baylor College of Medicine
Established on-line facility, coordinated by Baylor College of Medicine (Houston, Texas, US), providing resources (slides, visual meetings, commentaries), for clinicians, researches and educators on several aspects of dyslipidaemia, atherosclerosis and cardiovascular disease.