The National Privacy Principles
The Australian Government introduced new legislation that came into force on 21st December 2001 to protect the privacy of individuals. This legislation comprises 10 national Privacy Principles that apply to private sector organisations. You can find out more about these principles by calling the Office of the Privacy Commissioner on 1300 363 9921300 363 992 or through their website at www.privacy.gov.au.
The Australian Atherosclerosis Society and the FH Australasia Network respects and upholds your rights to privacy protection under the National Privacy Principles in regulating how we collect, use, disclose and hold your personal information. We have a detailed policy and set of procedures to ensure that only authorised staff have access to your personal information and that it remains confidential and only used for appropriate purposes and in accordance with this policy.
Why we collect your personal information
Your personal and sensitive information, including health information, is only collected as is necessary for a function or activity to enable the FH Australasia Network to carry out its work and deliver services to the community.
We may use your personal information to contact relatives notifying them of critical information that may ultimately save their life or send you information on cholesterol disorders. We will always attempt however to collect such information in a non-intrusive, lawful and fair manner.
How we collect your personal information
We collect your personal information when you provide it to The Australian Atherosclerosis Society and the FH Australasia Network in a number of ways such as:
- through a call to us by providing information to your physician who is associated with the FH Australasia Network
- through an online registration
- through the use of the FH Calculator (de-identified)
We may also collect your personal information from publicly available sources such as the telephone directory.
How we keep your personal information secure
If you provide us with your personal information, it is stored by us and is accessed only by authorised contractors or collaborators of The Australian Atherosclerosis Society and the Familial Hypercholesterolaemia Network.
Disclosing your personal information
The Australian Atherosclerosis Society and the FH Australasia Network will not provide your personal information to any other individuals or organisations except on a confidential basis to contractors who provide, for example, meeting management, database management, printing and mailing services to the Australian Atherosclerosis Society and collaborators who are involved with the Australian Atherosclerosis Society and have the aim of assisting you or your relatives. In these cases, we ensure that our contractors and collaborators are also bound by the National Privacy Principles to keep your personal information confidential.
The Australian Atherosclerosis Society and the FH Australasia Network will not provide your personal information to any overseas organisation however details may be provided to collaborating health professionals in the interest of aiding your health and/or relatives. In such a case, we will ensure that such organisations and/or individuals are bound by privacy laws at least as strict as those in Australia.
How to access, correct or update your personal information
If you have any complaints, questions or concerns about what information the Australian Atherosclerosis Society holds or about the accuracy of that information, please contact the AAS by email firstname.lastname@example.org
If the information that we hold about you is incorrect or not up-to-date, we will update it as soon as possible after you have shown us how and why it is incorrect.
In the unlikely event that we are unable to provide you with access to your personal information for legal reasons as specified in the Privacy Act, we will provide you with reasons for denying access.