{"id":838,"date":"2015-11-27T12:45:00","date_gmt":"2015-11-27T01:45:00","guid":{"rendered":"https:\/\/www.athero.org.au\/fh\/fh-registry\/"},"modified":"2025-04-24T16:55:51","modified_gmt":"2025-04-24T06:55:51","slug":"fh-registry","status":"publish","type":"page","link":"https:\/\/www.athero.org.au\/fh\/patients\/fh-registry\/","title":{"rendered":"FH Registry"},"content":{"rendered":"

What is a registry?<\/h3>\n

A registry is a\u00a0database (electronic record) where medical information, family history and other related information from patients is collected and stored for later retrieval and analysis.<\/p>\n

Why do we need a registry?<\/h3>\n

Currently patient records are only in the hospital where they receive treatment.<\/p>\n

The\u00a0National FH Registry aims to get all FH patient records onto one database<\/b>\u00a0<\/span>so that the information\u00a0can be analysed to identify FH distribution, diagnosis and treatment effectiveness, cardiovascular disease levels and the impact of new treatments and interventions.<\/p>\n

This will further the understanding of FH, aid health system planning and the development of the best treatment options\u00a0and therefore improve patient care.<\/p>\n

The National FH Registry will also provide equal opportunity to access the latest trials for new treatments for FH.<\/p>\n

The National FH Registry will collect and process data according to Australian laws and best practices and ensure privacy of the data.<\/p>\n

Once diagnosed with FH, patients will be asked to see if they wish to join the National FH Registry.<\/p>\n

To join the\u00a0National FH Registry :<\/h3>\n