General Information: Inherited High Cholesterol

What are inherited high cholesterol disorders?

MED-PED will initially focus on the most frequently-occurring inherited cholesterol disorder, namely familial hypercholesterolaemia (FH). FH is a genetic disorder that causes very high cholesterol levels. These levels are about twice normal, and often over 10 mmol/l (386 mg/dl). FH occurs in approximately 1 person in 500 (0.2%) of the general population.


What are the dangers of FH?
Left untreated, FH is likely to cause premature death from heart attack (often in men aged less than 55 and in women less than 65).

Can FH be treated and what are the benefits of treatment?
If treated effectively, cholesterol levels can be reduced to near normal, and the risk of premature heart attack substanially reduced. Such treatment has been shown to result in regression of coronary artery disease and reduced heart-related illnesses in both men and women with FH.

These benefits of treatment are likely to be greater if treatment is begun early in life.


How can FH be detected?
Detection of FH is possible through the measurement of cholesterol in the relatives of those who are affected with FH. Elevated blood cholesterol levels are found in about 50% of family members, while the other 50% have normal cholesterol levels and do not have FH.

It is very important to detect the presence of FH in children and young adults in order to institute treatment as early in life as possible.


How is FH inherited?
Because the gene for FH is a dominant gene, relatives with FH will pass the condition on to their children of whom, on average, 50% will be affected and 50% will be normal.

The key to the diagnosis of FH lies in the family tree. One side of the family will have had several members affected by premature death from either heart attack or sudden death from unknown cause (presumed heart attack).


Why participate in MEDPED?
MED-PED saves lives. Participation in MED-PED will help to detect family members with FH and improve their treatment in order to prevent future heart attack.

PH: (03) 9739 7697 | FAX: (03) 9739 7076
AAS Secretariat: 4/184 Main Street
Lilydale, VIC. 3140
Australia