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| International FH Foundation www.fh-foundation.org A global partnership to escalate awareness of FH in the public domain, medical community and government. The International FH Foundation orchestrates collaboration and resolve between these sectors to reduce the tragic costs of premature carduiac events and death in FH patients. HEART UK www.heartuk.org.uk Leading UK cholesterol charity that provides extensive resources for health professionals, patients and families on all aspects of the detection and management of FH. Public Health Genomics Foundation, UK www.phgfoundation.org International foundation that publishes authoritative reports on the role of advances in genomics in health care, and has a particularly excellent document on services for inherited cardiovascular conditions. National Heart Foundation, Australia www.heartfoundation.org.au Leading Australian charity that provides a wealth of resources for health professionals and the community on all aspects of primary and secondary prevention of cardiovascular disease. British Heart Foundation www.bhf.org.uk Leading British foundation provides excellent resources for health professionals and patients, including informative videos on a wide spectrum of conditions and risk factors. Centre for Genetics Education, New South Wales Health www.genetics.com.au Educational arm of NSW Genetic Service that provides genetic information of individuals and families affected by genetic conditions and health professionals who work with them. Activities include workshops and training programs. Human Genetics Society of Australasia www.hgsa.org.au Premier Australasian society that provides educational materials, training, polices, guidelines and position statements on all aspects of human genetics. Lipids Online, Baylor College of Medicine www.lipidsonline.org Established on-line facility, coordinated by Baylor College of Medicine (Houston, Texas, US), providing resources (slides, visual meetings, commentaries), for clinicians, researches and educators on several aspects of dyslipidaemia, atherosclerosis and cardiovascular disease. National Lipids Association (NLA), USA www.lipid.org US based multidisciplinary specialty society providing education, training, guidelines and position statements on all aspects of the detection and management of dyslipidaemia rnd related disorders. Learn Your Lipids, NLA www.learnyourlipids.com Information for patients with dyslipidaemia, including FH, as provided by the foundation of the National lipid Association in the US. New Zealand Guidelines Group www.nzgg.org.nz New Zealand group of experts that specialises in developing and implementing guidelines for best clinical practice; excellent resources on the assessment and management of all cardiovascular risk factors. Rational Assessment of Drugs and Research (RADAR), National Prescribing Service (NPS) www.nps.org.au/health_professionals/publications/nps_radar Evidence based assessment of all new drugs, PBS listings and latest research for health professionals provided by the NPS, an independent organisation funded by the Australian Government Department of Health and Ageing. Make Early Diagnosis Prevent Early Death (MEDPED) FH www.medped.org US based website of the original MEDPED Project coordinated by the University of Utah School of Medicine (Salt Lake City, Utah, US) focusing on all aspects of the management of FH, including education of patients and families and the first attempt at establishing a US registry. Office of Population Genomics, FH Pilot Cascade Screening Program, Western Australia www.genomics.health.wa.gov.au/fh State funded office that aims to translate genomic knowledge into health benefits for WA health; resources provided relevant to the detection and management of FH Wales FH Testing Service, Cardiff University www.fhwales.co.uk Leading FH service in the UK that provides useful information and resources for clinical practice, including activities of FH Family Forum. FH Support Group of Western Australia www.fhfamilysupportgroup.websyte.com.au Website of the first support group in Australia for families with FH; provides relevant information, communication and support services. FH Guideline Implementation Team Toolkit www.heartuk.org.uk/FHToolkit Invaluable resource for implementing the seminal NICE guideline 71 on identification and management of FH. |
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